Health
3 Tips for Living with Erythromelalgia

Erythromelalgia is an extremely rare condition that’s recognized as such by the National Organization for Rare Disorders (NORD). It affects an estimated 1.3 out of 100,000 people in the United States. But as rare as it is, it can be debilitating for the individuals who have it.
If you or a loved one has erythromelalgia, finding answers is obviously your greatest priority.
What is Erythromelalgia?
Erythromelalgia is extremely uncommon. However, for those who suffer from the condition, it’s a painful condition that commonly affects the feet and (sometimes) the hands. People with the condition describe it as an intense, burning pain that can be both episodic or continuous. Some people experience sudden flare ups, while others have a more chronic form of the condition.
“In most individuals, it is episodic/intermittent, with episodes of red hot feet and/or hands intermittently,” NORD explains. “Symptom onset may be gradual (insidious), with the condition potentially remaining relatively mild for years. However, in others, it may have a sudden (acute) onset, possibly spreading and becoming severe over weeks.”
For those interested in the etymology of the word, the prefix erythro means “redness.” Mel means “limb.” The suffix algia is typically used to indicate “pain.” So the term, while difficult for most to pronounce correctly on the first attempt, quite literally means painful red limbs.
Other names and related conditions for erythromelalgia include erythermalgia, Mitchell disease, Weir-Mitchell disease, and Gerhardt disease.
Doctors generally discuss erythromelalgia in two classifications: primary and secondary. Both tend to have similar symptoms, including burning pain, itchiness, redness, warmth to the touch, sores on the feet, and even radiating/shooting pain.
Primary erythromelalgia has no known cause. It’s most commonly seen in children, but can technically impact anyone. Painful symptoms and discomfort usually affect both sides of the body and get worse in warmer weather. Primary erythromelalgia attacks begin with itchiness that then progresses into severe burning pain. These attacks may last anywhere from several minutes to days.
Secondary erythromelalgia is diagnosed in people who have other conditions and diseases, like autoimmune diseases. This type of erythromelalgia is more commonly seen in adults and usually begins in middle age. The symptoms are pretty much identical to those of primary erythromelalgia.
Tips for Living With Erythromelalgia
Since most doctors know very little about erythromelalgia, there are no known cures. Most people just have to learn to live with it. Having said that, there are certain things you can do to treat the symptoms and make flare ups less likely.
- See the Right Specialist
As frustrating as it is, most doctors simply don’t know much about erythromelalgia. And if you think about it, who can blame them? With just 1.3 out of 100,000 people suffering from this condition, they could go years without seeing an erythromelalgia patient in their office. Thankfully, there are specialists who are very familiar with this condition.
When choosing a specialist, look for someone who knows this disorder in and out. Untamed Iona, for example, has a specialist who actually has the condition herself! You can even book an online call with her (so it doesn’t matter where you’re located).
- Try Medication
Again, there’s no perfect medication that works for everyone with erythromelalgia. There are, however, effective options that can work. You must be open to trial and error.
Oral medications include options like magnesium selective serotonin, calcium antagonists, tricyclic antidepressants, reuptake inhibitors, and others. Topical medications include compounded creams (gel of 1 percent amitriptyline and 0.5 percent ketamine), capsaicin cream (Zostrix), and lidocaine and menthol (Lidoderm).
- Consider Surgery
While it’s definitely a last resort option, there are surgical treatments that can provide relief. The procedure, known as a sympathectomy, cuts nerve endings that send pain signals to the hands and feet. This procedure does come with the potential for serious side effects, including infection, bleeding, and permanent nerve damage. Thus it’s never an ideal choice.
Live Your Best Life
While there might not be a cure for erythromelalgia, there’s still plenty of hope. Just because you haven’t found relief yet doesn’t mean you never will. It’s a matter of speaking with the right people and trying a number of options until something works for you. Whether it’s eliminating a certain factor that seems to cause flare ups, using a specific medication, or even exploring surgery as an option, there are plenty of treatment methods. Don’t give up on yourself. You are your greatest advocate!
Health
How a Quiet Fulham Clinic Became London’s Most Coveted Wellness Secret

Byline: Gerome Alvarez
In London’s cutthroat wellness landscape, few businesses manage to capture community attention without fanfare or celebrity endorsements. Yet Spa & Massage Fulham has accomplished exactly this, weaving itself into the cultural fabric of one of London’s most discerning neighborhoods within weeks of its September 2025 opening. The phenomenon began as whispers among friends, colleagues, and neighbors—all independently discovering what would soon become known across social media platforms as “the best massage in London.”
This organic word-of-mouth growth reveals something deeper than marketing prowess; it signals a genuine transformation in how Londoners approach wellness and self-care. The clinic at 709 Fulham Road represents more than successful business expansion; it embodies a broader cultural shift toward viewing therapeutic massage as essential healthcare rather than occasional luxury.
The Science-Backed Foundation
The surging demand for massage therapy is not merely about relaxation; it is rooted in substantial scientific evidence that validates what clients experience firsthand. Research consistently demonstrates that massage therapy reduces cortisol levels by up to 31% while increasing mood-regulating neurotransmitters serotonin and dopamine by 28% and 31% respectively. These physiological changes translate into tangible benefits: improved sleep quality, enhanced focus, reduced chronic pain, and strengthened immune function.
“Massage therapy works in multiple ways to help reduce stress. First and foremost, it helps to lower levels of cortisol, the primary stress hormone,” explains recent research on therapeutic massage. For London’s high-pressure lifestyle, this represents more than indulgence; it is preventive healthcare. The integration of scientific expertise sets Spa & Massage apart from typical wellness businesses, with Professor Eyal Lederman, a world-renowned expert in neurophysiology and manual therapy, serving as the company’s medical director.
The Visionary Origins
The story begins in 2007 when entrepreneurs Alykhan and Nicole Thobani, inspired by journeys through Thailand, recognized a fundamental gap in London’s wellness market. Rather than treating massage as an expensive luxury, the couple witnessed how Eastern cultures integrated therapeutic touch as essential to balanced living, as fundamental as diet and exercise. This revelation sparked the mission to bring accessible, high-quality massage therapy to London’s high streets.
“What sets us apart from other massage therapy providers is having Professor Eyal Lederman as part of our team,” Thobani explains. Professor Lederman’s research at King’s College London on the neurophysiology of manual therapy provides the scientific foundation that distinguishes Spa & Massage from competitors. Nearly two decades later, the company now serves over 2,500 clients weekly across seven London locations, with each expansion building upon lessons learned from previous successes.
The Fulham Experience Defined
The newest location deliberately avoids ostentatious luxury, instead creating what insiders describe as “understated sophistication”—an environment that whispers quality rather than shouting opulence. Central to the experience is the signature bespoke tea blend, crafted in-house to begin each client’s journey toward relaxation. This attention to detail extends throughout the treatment, where therapists like Roxanne—with backgrounds in clinical physiotherapy and experience from London’s most prestigious five-star spas—deliver what clients describe as transformative sessions.
The clinic’s approach attracts therapists of exceptional caliber, including professionals like Olga, who draws “many celebrity clients and high-profile athletes” for her transformative skills. Operating seven days a week from 9:00 AM to 10:00 PM, the clinic makes professional massage therapy accessible to busy Londoners seeking consistent, science-backed wellness solutions. The discrete nature of the clientele, protected by sunglasses and an air of privacy, has only added to the brand’s mystique and appeal.
Building an Extraordinary Following
Since its inception, Spa & Massage Fulham has cultivated what can only be described as a devoted following that transcends typical service provider relationships. “Our team is obsessed with making sure that each client has an expert massage, with a positive health and wellbeing outcome,” Thobani notes. This focus on measurable results rather than superficial relaxation has attracted clients who view regular massage not as an occasional indulgence but as essential maintenance for peak performance.
Client testimonials consistently emphasize transformational outcomes that extend far beyond the treatment room. “I have been coming for my regular massage every week for years now, I just sleep better, I am happier, calmer, and perform at my very best. With massage therapy I live my best life. It is like I feel superhuman during the week,” shares one long-term client. This level of commitment reflects a fundamental shift in how affluent Londoners prioritize health and wellbeing, with weekly bookings becoming the norm rather than the exception among regular clients.
The Future of London Wellness
Perhaps most intriguingly, Spa & Massage has attracted backing from heavyweight private equity professionals and investment banking leaders, not as corporate investments, but as personal commitments from individuals who became clients first. These investors, who Thobani diplomatically describes as preferring discretion, represent a fascinating convergence of professional success and personal wellness priorities. This phenomenon reflects broader trends in the wellness investment landscape, where private equity firms increasingly recognize the substantial returns in premium wellness services.
As Spa & Massage Fulham establishes itself in one of London’s most competitive wellness markets, it represents the evolution of urban healthcare toward proactive, science-backed solutions. The clinic’s success suggests that Londoners are ready to embrace massage therapy as an essential component of modern urban living, challenging traditional notions of luxury and self-care. In this context, the quiet revolution unfolding at 709 Fulham Road points toward a future where wellness is not an afterthought but a cornerstone of how successful professionals maintain an edge in an increasingly demanding world.
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