Health

3 Tips for Living with Erythromelalgia

Published

3 years ago

December 5, 2021

Erythromelalgia is an extremely rare condition that’s recognized as such by the National Organization for Rare Disorders (NORD). It affects an estimated 1.3 out of 100,000 people in the United States. But as rare as it is, it can be debilitating for the individuals who have it.

If you or a loved one has erythromelalgia, finding answers is obviously your greatest priority.

What is Erythromelalgia?

Erythromelalgia is extremely uncommon. However, for those who suffer from the condition, it’s a painful condition that commonly affects the feet and (sometimes) the hands. People with the condition describe it as an intense, burning pain that can be both episodic or continuous. Some people experience sudden flare ups, while others have a more chronic form of the condition.

“In most individuals, it is episodic/intermittent, with episodes of red hot feet and/or hands intermittently,” NORD explains. “Symptom onset may be gradual (insidious), with the condition potentially remaining relatively mild for years. However, in others, it may have a sudden (acute) onset, possibly spreading and becoming severe over weeks.”

For those interested in the etymology of the word, the prefix erythro means “redness.” Mel means “limb.” The suffix algia is typically used to indicate “pain.” So the term, while difficult for most to pronounce correctly on the first attempt, quite literally means painful red limbs.

Other names and related conditions for erythromelalgia include erythermalgia, Mitchell disease, Weir-Mitchell disease, and Gerhardt disease.

Doctors generally discuss erythromelalgia in two classifications: primary and secondary. Both tend to have similar symptoms, including burning pain, itchiness, redness, warmth to the touch, sores on the feet, and even radiating/shooting pain.

Primary erythromelalgia has no known cause. It’s most commonly seen in children, but can technically impact anyone. Painful symptoms and discomfort usually affect both sides of the body and get worse in warmer weather. Primary erythromelalgia attacks begin with itchiness that then progresses into severe burning pain. These attacks may last anywhere from several minutes to days.

Secondary erythromelalgia is diagnosed in people who have other conditions and diseases, like autoimmune diseases. This type of erythromelalgia is more commonly seen in adults and usually begins in middle age. The symptoms are pretty much identical to those of primary erythromelalgia.

Tips for Living With Erythromelalgia

Since most doctors know very little about erythromelalgia, there are no known cures. Most people just have to learn to live with it. Having said that, there are certain things you can do to treat the symptoms and make flare ups less likely.

See the Right Specialist

As frustrating as it is, most doctors simply don’t know much about erythromelalgia. And if you think about it, who can blame them? With just 1.3 out of 100,000 people suffering from this condition, they could go years without seeing an erythromelalgia patient in their office. Thankfully, there are specialists who are very familiar with this condition.

When choosing a specialist, look for someone who knows this disorder in and out. Untamed Iona, for example, has a specialist who actually has the condition herself! You can even book an online call with her (so it doesn’t matter where you’re located).

Try Medication

Again, there’s no perfect medication that works for everyone with erythromelalgia. There are, however, effective options that can work. You must be open to trial and error.

Oral medications include options like magnesium selective serotonin, calcium antagonists, tricyclic antidepressants, reuptake inhibitors, and others. Topical medications include compounded creams (gel of 1 percent amitriptyline and 0.5 percent ketamine), capsaicin cream (Zostrix), and lidocaine and menthol (Lidoderm).

Consider Surgery

While it’s definitely a last resort option, there are surgical treatments that can provide relief. The procedure, known as a sympathectomy, cuts nerve endings that send pain signals to the hands and feet. This procedure does come with the potential for serious side effects, including infection, bleeding, and permanent nerve damage. Thus it’s never an ideal choice.

Live Your Best Life

While there might not be a cure for erythromelalgia, there’s still plenty of hope. Just because you haven’t found relief yet doesn’t mean you never will. It’s a matter of speaking with the right people and trying a number of options until something works for you. Whether it’s eliminating a certain factor that seems to cause flare ups, using a specific medication, or even exploring surgery as an option, there are plenty of treatment methods. Don’t give up on yourself. You are your greatest advocate!

Health

How Telehealth Works for Addicts in Recovery

Published

1 week ago

March 6, 2025

Michelle Langton

Technology has been shaping healthcare for decades, and these days, tech advancements for the health sector are happening faster than ever before. Telehealth has emerged as one advancement that has touched every healthcare discipline, from cancer care to pediatrics. The innovative approach of telehealth is breaking down barriers to care and even reaching those who are struggling with substance abuse.

By leveraging digital platforms, recovery specialists can offer better access to therapy sessions, support groups, and medical consultations. These breakthroughs in accessibility are significant for people in healthcare deserts who are languishing under increased addiction rates and a lack of reliable treatment options.

Nick Padlo, founder and CEO of Sophros Recovery in Florida, has seen the benefit of telehealth for recovering addicts firsthand. “Individuals struggling with addiction can now find support and guidance if they do not have access to a treatment center near their home,” he explains. “These virtual programs are designed to provide comprehensive care, similar to traditional in-person treatment, but with the added convenience of digital accessibility.”

Here, we explore the benefits of telehealth for recovery and how clinicians and other professionals in the field can best utilize it for better outcomes.

An increased need for comprehensive recovery

The United States saw over 107,000 overdose deaths in 2023. This was a notable increase from previous numbers. The emergence of fentanyl as the drug of choice for many and the perpetuation of alcohol and other drug abuses have made access to comprehensive recovery even more important than ever.

“Understanding the options available can be the first step to recovery,” says Padlo. When people have easier access to help, they may be more apt to seek sobriety.

The pandemic saw a marked increase in substance abuse, laying bare the need for digital access to recovery resources. During the COVID shutdown, the crucial need for an alternative to in-person treatment was evident, and the benefits of such treatment options allowed clinicians and other professionals to carry this digital access to recovery care through the pandemic and into the post-COVID world.

In addition, those living in rural areas or areas with a lack of access to comprehensive recovery care often have needs on par with those in larger urban areas. Telehealth allows people to access the same professionals that those in big cities rely upon.

Studies have shown that continuity of care is critical to the success of addiction recovery. Telehealth can facilitate ongoing engagement with those in recovery, securing continuity of care and leading to better recovery outcomes.

A modern approach

“Online addiction recovery typically involves a combination of individual therapy, group therapy, educational sessions, and support groups, all conducted via video conferencing or other online tools,” explains Padlo. The flexibility of these programs allows participants to schedule them around their availability and considering their other commitments.

“We aim to mirror the effectiveness of traditional methods,” says Padlo. “We are providing the same level of care and support through a virtual format.”

Padlo stresses that online recovery can also reduce stigmas that are associated with seeking help for one’s addictions. When those in recovery can participate from the comfort of their own home, they may be more apt to commit to the recovery process.

People will need to consider their personal circumstances when determining if telehealth for addiction recovery is right for them. They may want to evaluate how comfortable they are with technology and whether they have a stable internet connection. Also, it helps to have a strong support system to keep one accountable since it can sometimes be easier to ignore digital meeting commitments.

However, Padlo cautions that those with severe addiction issues or co-occurring addictions may fare better with in-person detox and recovery.

Telehealth can be a powerful tool in the fight against addiction. The option offers a range of benefits, including easier access, privacy, and even savings for some. According to a recent study by the Oregon Health and Science University, telehealth may be just the solution to overcoming the stigma of rehab and recovery and radically reducing barriers for people who need it the most.

While telehealth for addiction recovery may not be a one-size-fits-all solution, and some people may require more intensive care and medical intervention, it has broken barriers for those in areas of limited access to recovery or seeking an option that offers more privacy.

As the field of virtual health delivery continues to evolve, the benefits of telehealth for addiction recovery will become clear. Telehealth provides comprehensive, discrete, and effective care for those starting or continuing their recovery journey.